October 2015 NYC Event: Capstone Rocks Fundraising Event


Matthew Arcati presented The Friends of T.J. Foundation to Capstone, Inc. as a possible recipient for Capstone’s annual charity event. With much excitement the Foundation was chosen to be the sole recipient at the Capstone Charity Night for 2015!

Cups for A Cause is a beer pong and flip cup tournament with high stakes!

The event was generously hosted by Capstone at the fun venue of Slate, with food, drinks and prizes. The highlights of the night were touching speeches by Matt Arcati and Paul Britton, the CEO of Capstone. It was emotional witnessing a crowd of new supporters, many of whom never met T.J., so touched listening to T.J.’s story and the work of the Foundation. The event raised $140,000. Thank you CAPSTONE!!!!

June 2015…Friends of TJ Outing: A Triumphant Day!


Wow! The 2015 Outing in June was a tremendous success on so many levels!

Golf dominated the day with 250 golfers at Huntington Country Club and Huntington Crescent Club. There was also a strong showing of tennis players that filled the courts at the Lloyd Neck Bath Club and an equally enthusiastic group used Ray’s Room for a fun afternoon of bridge. The volunteers and board members were instrumental in making all of the different activities happen so seamlessly in so many different locations.

Sponsorships and auction items were the cornerstone of the success. We were extraordinarily fortunate and grateful to have “Lucky to Live Here Realty” as this years event sponsor.  The generosity of all the sponsors was incredible and if that is a measure of growth and belief in this project, together we are on the right track!

More importantly, everyone involved with the Foundation is so thankful to the community and beyond for setting one Monday in June aside to remember T.J., honor his legacy and support research. The love in the air that day was quite emotional. We know T.J. would be so pleased that everyone is joining together in his name to tackle the lack of research so commonly found in rare cancers.

Thanks to our friend and resident photographer, Bob Kopprasch, the first photo drone flew over Huntington Country Club.  The enormous view of the Outing was majestic!

NYC Winter Event


What an exceptional night! A big thank you to the band, Run for Cover, and everyone turning out at Hill Country in NYC on March 4th.

We ended up with over 150 attendees in our inaugural event and raised money and awareness for the Rhabdomyosarcoma cause. It was a special honor to be joined by the Cold Spring Harbor Laboratory team partnering with us on this important research. A HUGE thank you to all involved. Looking forward to an even bigger and better NYC Winter Event 2016!


Golf Outing 2014


A spectacular day! Wonderful participation, beautiful weather and a great venue all contributed to a very successful outing.  A tremendous thank you to our event sponsor, Signature Premier Properties, as well as all of the families and businesses who sponsored the event. Numbers in terms of attendance and donations exceeded the 2013 Outing.

Thank you to everyone who helped in
so many ways. Some volunteered for registration, others worked on live or silent auction items and a very generous friend took photos all day long. Great friends jumped in at the last minute to round out the exact numbers needed for tennis and bridge. They made the event planning seem effortless.

We hope everyone has been thanked either personally, by email, by letter or by phone.
Every single person played an important role in delivering our message and for the successful outcome of funds raised for research. More importantly, everyone is helping the Foundation fulfill T.J.’s search for better treatments, a longer life for those diagnosed and maybe a cure!


May Symposium


As many of you know, the first three day symposium on RMS ever to be held was hosted in May, 2014 at CSHL’s Banbury Center.

This symposium, which Dr. Stillman addressed in his letter to our Foundation, held the key to unlocking the pieces of scientific information that were necessary to move forward with the projected research. The symposium also identified the scientists and clinicians who would eventually partner with the Lab to start this critically needed research. The Michelle Paternoster Foundation and the Christina Renna Foundation also funded the Symposium.

This fall, we were thrilled to have the Clarke Gillies Foundation join the other groups. Much help is needed to fund a world class research project. Our hopes of expanding are becoming a reality.